by Shea Maheu. on 2015-03-18 15:07:55
My 2 boys Nicholas and Logan Maheu were diagnosed with ARPKD at birth and they have been dealt a VERY long and VERY difficult and painful life.
They chose to still live life to the fullest when out of hospitals and bed.
I have been by their side since the beginning for both! I hook up tube feeds, give nightly injections of Growth Hormone because their disease prevents properly growing on own, and several medications. They will both need Kidney and Liver Transplants. So the National Kidney Foundation is VERY important to my family and every year We walk to show our support for my boys and everyone that has Kidney Diseases.
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